The Bazelon Center commends the U.S. Department of Health & Human Services (HHS) for issuing the new Section 504 Final Rule, Discrimination on the Basis of Disability in Health and Human Service Programs or Activities. The rule updates and strengthens the lead regulation implementing Section 504 of the Rehabilitation Act of 1973, a federal law that prohibits disability-based discrimination in federally funded health and human service programs and activities, including in healthcare and child welfare programs. The HHS Section 504 rule incorporates the U.S. Supreme Court’s ruling in Olmstead v. L.C. (Lois Curtis) that people with disabilities have a right to live and receive services in their homes and community and to be free from segregation and unnecessary institutionalization. It also explains how this mandate applies in the child welfare system. “HHS’ new Section 504 rule updates and clarifies federal disability rights regulations that had not been updated since the 1970s,” explained Bazelon Legal Director Megan Schuller. “The new rule is an important step towards realizing the promise of these laws to eradicate disability discrimination in all its forms, including the continued isolation and unnecessary institutionalization of people with mental disabilities.” Last fall, the Bazelon Center co-authored coalition comments with members of the Consortium for Constituents with Disabilities (CCD) that responded to HHS’ then-proposed Section 504 rule. The comments included key Bazelon Center priorities. Bazelon led coalition efforts to ensure the full integration of people with disabilities in the community and to advance the rights of children and parents with disabilities in the child welfare system. We are pleased to see our recommendations reflected in the rule. Responsive to feedback from Bazelon and partners, the rule defines “most integrated setting” broadly. This updated definition aligns with longstanding Department of Justice Olmstead guidance, as well as widely accepted Key Principles for Community Integration for People with Disabilities. The rule also recognizes that an entity’s practices, as well as its policies, can result in segregation, and that settings like group homes that are located in the community can still be segregated and discriminatory. The rule also requires child welfare agencies to place children with disabilities in the most integrated setting and prohibits “the unnecessary or unjustified segregation of children with disabilities, such as default placement in institutional or other congregate care,” which “should never be considered the most appropriate long-term placement for children.” Children with disabilities must be supported to live in the most integrated setting, which “is almost always the family home or a foster care setting.” In response to our comments, HHS also made explicit that Section 504 applies to family preservation services and reunification efforts and that parenting assessments must be individualized and measure parenting ability, not a parent’s disability. The final rule was officially published today.
Please join us in sharing this critical information, and in ensuring that the promise of Section 504 and the ADA is fully realized. Read the Bazelon Center’s summary and analysis of key provisions. Read the Final Rule, which will take effect on July 8, 2024. Read the Final Rule Fact Sheet, which summarizes key updates. Learn more about the protections of Section 504 of the Rehabilitation Act. | 
